Mia had a finger poke today. She is always so brave...no tears. Her hgb was 8.4 which I thought was low after only being transfused on August 27th. They tested to see what her iron level was a month or so ago, and it is so high. It ideally should be below 1000 and it is currently at 1955. Some other blood work is showing that she's close to developing diabetes, as her blood sugar level was high when they tested for the iron. Unfortunately, due to all the blood transfusions, the extra iron packs onto your organs...and in Mia's case, it's showing up in the pancreas. As if we need one more medical issue to get through.
Please pray for Mia, that her iron count would be lowered by taking her exjade dissolved in OJ every morning, and that she wouldn't develop diabetes.
We truly know that God is in control.
This is what Mia does to keep busy while waiting for the doctor to come in the room.
2 comments:
Good job Kristi on posting on your blog! And I'll be praying for your sweet girl. I can't imagine how hard it must be to see your baby go through so much.
Lord Willing, we pray that Mia doesn't develop diabetes and finds a donor soon. We pray that God continues to give wisdom & new tx's from the doctors for Mia and that HE strengthens your family through this. WE love you guys!
PS she is too cute for words!!
We love you guys,
Christina,Ryan, & Ava
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